Celine Dion opens up on battling stiff-person syndrome for her children, says she didn't 'want them to be scared'

Celine Dion opens up on battling stiff-person syndrome for her children, says she didn't 'want them to be scared'
Celine Dion, 56, is a proud mother to three sons Rene-Charles, 23, and 13-year-old twins Nelson and Eddy (@celinedion/Instagram)

LOS ANGELES, CALIFORNIA: Celine Dion revealed what kept her going during her health struggle amid her stiff-person syndrome diagnosis.

The ‘My Heart Will Go On’ singer, 56, opened up in her yet-to-be-released documentary, where she walked through her entire journey.

PARIS, FRANCE - JULY 03: Celine Dion attends the Valentino Haute Couture Fall/Winter 2019 2020 show
Celine Dion shares her health struggle over new Prime Video documentary (Getty Images)

Celine Dion worried for her 3 sons after her stiff-person syndrome diagnosis

Dion lost her husband Rene Angelil to throat cancer in 2016, and she was diagnosed with the rare autoimmune and neurological disorder stiff-person syndrome in August 2022.

"I barely could walk at one point, and I was missing very much living. My kids started to notice. I was like, 'OK, they already lost a parent. I don't want them to be scared,'" Dion shared with People.

"I let them know, 'You lost your dad, [but] mom has a condition and it's different. I'm not going to die. It's something that I'm going to learn to live with."

Dion is a proud mother to three sons Rene-Charles, 23, and 13-year-old twins Nelson and Eddy.

The 56-year-old revealed in an emotional video about her diagnosis in December 2022, "I've been dealing with problems with my health for a long time, and it's been really difficult for me to face these challenges and to talk about everything that I've been going through."

In the documentary, Dion shared about the effort she’s putting in to be back and be able to perform again.

"I miss it so much. The people, I miss them," said Dion. "If I can't run, I'll walk. If I can't walk, I'll crawl ... I won't stop."


 
 
 
 
 
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A post shared by Céline Dion (@celinedion)


 

Celine Dion shared she had symptoms of stiff-person syndrome for several years

Dion recently admitted that she kept her health struggles to herself for years.

The singer suffered from stiff person syndrome for 17 years, as per RadarOnline report.

The six-time Grammy winner opened up about the ‘burden’ of keeping the secret to herself during a recent interview.



 

“I could not do this anymore. Lying for me, the burden was too much,” Dion told host Hoda Kotb.

She admitted one of the reasons she didn’t share her diagnosis earlier was her late husband Rene Angelil.

“We did not know what was going on. I did not take the time…I should have stopped, took the time to figure it out,” she said.

‘I Am: Celine Dion', directed by Academy Award-nominated director Irene Taylor, will be available from June 25 on Prime Video.


 
 
 
 
 
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